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Greater Bay Area Cancer Registry

Frequently Asked Questions **


Frequently Asked Questions about the Greater Bay Area Cancer Registry

Frequently Asked Questions about Cancer


Frequently Asked Questions about the Greater Bay Area Cancer Registry

What is the Greater Bay Area Cancer Registry?
The Greater Bay Area Cancer Registry (GBACR) gathers information on all cancers diagnosed and treated in a nine-county area of northern California. The GBACR collects information from medical records provided by hospitals, doctors, and other care facilities. Information collected by the GBACR is used to better understand cancer occurrence and survival in the Greater Bay Area. For more information about the GBACR and its operations, please visit our Greater Bay Area Cancer Registry webpage.

Which counties are included in the Greater Bay Area?
The Greater Bay Area is a nine-county area, including Alameda, Contra Costa, Marin, Monterey, San Benito, San Francisco, San Mateo, Santa Clara and Santa Cruz counties.

Where can I find cancer rates for the Greater Bay Area and the counties it includes?
The Greater Bay Area Cancer Registry (GBACR) produces annual reports on cancer incidence and mortality rates. The reports are usually published in the spring of each year, and are available by request or can be found on our website under the link, Cancer Data and Statistics for the General Public. To obtain a hard copy of the report, please contact Sheena Cresswell at scresswe@nccc.org or by calling 510-608-5036.

The estimated numbers of new cancer cases and deaths for the current year in California and in each county are provided in the document, California Cancer Facts and Figures, published each year by the American Cancer Society and the California Cancer Registry. This publication is available by request to ACS (1-800-ACS-2345), and is also available on our website under Other Registry Reports and Publications.

The GBACR does not annually produce cancer rates for cities because population data are not available in the age group, gender, and race/ethnicity categories required to calculate rates.

If you need cancer data that you cannot find in published reports (like those listed above), here are two ways to obtain it: 1) through interactive websites that allow you to specify, calculate and display the data you want, or; 2) through a data request to us at the Greater Bay Area Cancer Registry (GBACR).

Interactive Cancer Data Websites

  • Fast Stats: Interactive tool to access key SEER and US cancer statistics by age, sex, and race
  • California Cancer Registry Interactive Incidence and Mortality Tools

Why are Greater Bay Area Cancer Registry data almost two years behind?
The Greater Bay Area Cancer Registry collects information from many different sources: hospitals, clinics and other health care facilities throughout the nine-county area. It is very important that the information the registry collects is accurate and complete. It takes time to collect and verify all this information.

Complete information on a cancer case and the first course of treatment may not be available until six months after the initial diagnosis. Many cases are reported to the regional registries by multiple facilities or health care providers, and all the reports must be consolidated into a single record containing the best information available. Another factor is the increasing number of cancer patients who are diagnosed and treated in doctors' offices without ever being admitted to a hospital; more effort is required to find these cases. In addition, the strict quality control procedures needed to produce complete and accurate data are labor intensive. The vast majority of cases are reported to the GBACR within 12 months of the diagnosis date, but the data cannot be published until case reporting is estimated to be at least 95 percent complete--and the last 10 percent are the hardest to complete.

Can you delete my name and personal information from the Greater Bay Area Cancer Registry?
The state law requiring that all cancers diagnosed in California be reported does not permit deletion of cancer patient information from the registry. To fulfill its purpose of providing information to find the causes and cures for cancer, it is vital for the Greater Bay Area Cancer Registry data to be complete.

The law mandates that registry data be used solely for research into the causes and cures for cancer and that patient identity be kept confidential, but also that confidential information may be released for such research. However, patients can refuse to participate in any particular research study, or all research studies.

Patients who do not wish to be contacted for any research study can request to have their registry record flagged so that the Greater Bay Area Cancer Registry will not release their names to researchers. However, they may still be contacted by researchers who obtained their name directly from a hospital or facility where they were treated.

For more information on cancer reporting in California, please visit the California Cancer Registry's Publications website.

What data are available from the Greater Bay Area Cancer Registry for research use?
Several types of data are available from the Greater Bay Area Cancer Registry. Registry data are given out in two forms: (1) statistical (grouped) data and (2) individual data.

Reports containing tabulated data on cancer incidence and mortality from 1988 through the most recent year for which data are complete can be requested and are free of charge. The reports are usually published in the spring of each year, and can be found on our website under the link, Cancer Data and Statistics for the General Public. To obtain a hard copy of the latest report, please contact Sheena Cresswell at scresswe@nccc.org or call 510-608-5000. Customized statistical data from the registry may also be requested.

Individual patient data may be used to study cancer causes, prevention, care and treatment. These data are provided only to researchers with projects that meet stringent requirements for scientific merit and handling of confidential information. To learn more about these requirements, please visit our Cancer Data for Researchers page.

How complete are Greater Bay Area Cancer Registry data?
State law requires that every cancer diagnosis made in California from 1988 onward be reported. The exceptions are the common skin cancers (basal and squamous cell carcinomas) and certain non-invasive cancerous conditions of the uterine cervix. The Greater Bay Area Cancer Registry, as well as the cancer registrars and others who collect cancer data for the GBACR, all make a major effort to ensure that the data are as accurate and complete as possible. The level of completeness increases with time, and statistical summaries of the data from a given year are not released until the data are estimated to be at least 95% complete.

What is the GBACR's role in cancer cluster investigations?
As a state-mandated regional cancer registry, one of the responsibilities of the GBACR is to respond to requests from the public for cancer data about the Greater Bay Area. One of the most common type of requests stems from a concern that environmental hazards may be causing excess cancer in a community (sometimes called a "community cancer concern" or a "cancer cluster").

A cancer cluster can be defined in many ways. It can involve groups of persons with cancer who have any of a number of characteristics in common: age, gender, behavior, occupation, family members, time frame, location, type of cancer, etc. However, it has generally come to mean an unexplained excess of people with cancer diagnosed close together in time and geographic area.

The Greater Bay Area Cancer Registry (GBACR) plays a significant role in cancer cluster investigations. NCCC responds to these concerns through a combination of education, information, and statistical analysis.

For more information about cancer concerns please download our newsletter Greater Bay Area Cancer Registry Report and visit the California Cancer Registry's Frequently Asked Questions about Neighborhood Cancer Concerns webpage.  If you still have questions or concerns after reading the newsletter, please contact Sheena Cresswell, Epidemiologist, at scresswe@nccc.org, or call 510-608-5036.




Frequently Asked Questions about Cancer in the Greater Bay Area

How common is cancer?
Cancer is very common in California, the United States, and in most other developed countries. In the Greater Bay Area, more than 30,000 people are diagnosed every year with some form of invasive cancer, not including the common basal and squamous skin cancers. Based on current statistics, more than two out of every five Californians will develop cancer at some time in their lives, and about one in 340 children will be diagnosed with cancer before age 20 (California Cancer Facts and Figures, 2007). Many cancers are now curable and cancer treatment continues to improve. Nonetheless, nearly one out of five Californians dies from cancer.

Which types of cancer are most common?
There are many different kinds of cancer, depending on where in the body the cancer starts and the type of cell involved. The four most common types are: prostate, breast, lung, and colorectal cancers. Out of every twenty cancer diagnoses, about three will be breast cancers, three will be prostate cancers, three will be lung cancers, and two will be colorectal. There will be about one in the bladder or kidney, one in the ovary, uterus or cervix, and one will be a lymphoma. The remaining six will include a variety of types, such as melanoma, leukemia, cancers of the mouth and throat, pancreas, stomach and many others.

How common is skin cancer?
This depends on the type of skin cancer. The American Cancer Society estimates that approximately one million basal and squamous cell carcinomas of the skin will have been diagnosed in the US in 1998, compared with a total of 1.23 million invasive cancers of all other types combined. Precise information on the incidence of basal and squamous cell carcinomas is very difficult to collect because these cancers are mostly diagnosed and treated in doctors' offices and rarely lead to serious disease. For these reasons, information on basal and squamous cell cancers is not collected by most cancer registries.

The other type of skin cancer that commonly occurs is melanoma. Data on melanomas are collected by most cancer registries, as it is the skin cancer that is most likely to metastasize (spread) to other parts of the body. Melanomas were the fifth most common cancer diagnosed overall among non-Hispanic white males in the Greater Bay Area during the period 2000-2004.

Who gets cancer?
Unfortunately, almost anyone can develop cancer, even children and young adults who lead active, healthy lives. However, nearly 60 percent of the cancers diagnosed in California are among people 65 and older, who make up only about 10 percent of the population. Surprisingly, there are large differences among people of different ethnic origins. Generally, African American men have the highest cancer risk, and non-Hispanic white people have substantially higher cancer rates than persons of Latino or Asian origin. Childhood cancer rates are similar across ethnic groups.

How many people currently have cancer?
The current estimate in the recent California Cancer Facts and Figures is that more than 950,000 Californians alive in 2007 have a history of cancer, not including basal or squamous cell carcinomas of the skin or certain non-invasive cancerous conditions of the uterine cervix. Many of these individuals have no further evidence of the disease, and have the same life expectancy as people who have never been diagnosed with cancer.

What causes cancer?
It is rarely possible to find the cause of a cancer in an individual, but studies on groups of people with cancer have shown specific risk factors to be associated with specific cancers. This suggests that different types of cancer probably have different causes. These studies also indicate that cancer formation is a multi-step process ('multi-factorial'), and that for most cancers the time from a cancer-causing exposure to a clinically diagnosable cancer averages about 20 years.

Among the known risk factors for cancer, tobacco stands out. Cigarette smoking is associated with more than 85 percent of all lung cancers, and with a substantial proportion of cancers of the bladder, mouth and throat, stomach, pancreas and others. Diet is also a risk factor; higher cancer rates are seen in people who eat a diet high in fat and low in fresh vegetables and fruits. It is estimated that diet and tobacco together account for approximately two out of three cancers.

Breast cancer is the most common cancer among women. About 50 percent of breast cancers are thought to be explained by known risk factors such as a family history of cancer and hormonal functions associated with early onset of menstruation and late menopause, delayed childbearing and having fewer children. Few risk factors have been defined for the most common cancer in men, prostate cancer.

Occupational studies have shown certain chemicals and other substances to be carcinogenic; these include asbestos, benzene, arsenic, vinyl chloride and other industrial products. Exposure to these substances is thought to account for about 5 percent of all cancers.

Are cancer rates in the Greater Bay Area going up?
No!  Overall cancer incidence and mortality rates have continued to decline in the Greater Bay Area, in large part due to declines in tobacco-related cancers in males and increased use of cancer screening tests in females. Incidence rates for invasive breast cancer declined sharply in most racial/ethnic groups for the years 2003 and 2004. Work is ongoing to see if these declines are temporary and if they relate to the stoppage of hormone replacement therapy by many women after the July 2002 announcement by the Women's Health Initiative that estrogen/progestin hormone therapy increases the risk of developing breast cancer and heart disease.

However, even if the rates of cancer change very little, the total numbers of people who develop cancer will increase as the population gets older. This, combined with the fact that more people are surviving cancer and that people discuss cancer more readily, may have contributed to the widespread impression that the risk of developing cancer has increased recently.

How common are cancer clusters?
Cancer clusters are rare and usually due to chance. In only 5-15% of reported cancer clusters statistical testing confirm the number of observed cases exceeds the number of expected. Those investigations that do find an excess of cancer cases usually are unable to identify a specific environmental cause.

For more information about cancer clusters please download our newsletter Greater Bay Area Cancer Registry Report and visit the California Cancer Registry's Frequently Asked Questions about Neighborhood Cancer Concerns webpage. If you still have questions or concerns after reading the newsletter, please contact Sheena Cresswell, Epidemiologist, at scresswe@nccc.org, or call 510-608-5036.

How can I find out more about a particular cancer?
There are many cancer resources available by phone and online. Two that are renowned for their high quality include the National Cancer Institute's Cancer Information Service at 1-800-4-CANCER ( 1-800-422-6237), and the American Cancer Society (1-800-ACS-2345).

How can I enroll in a clinical trial for cancer treatment?
Information on clinical trials is available from the National Cancer Institute's Cancer Information Service at 1-800-4-CANCER (1-800-422-6237), and from their Comprehensive Cancer Database website.

How did a cancer researcher get my name and phone number?
A cancer researcher may have obtained your name and phone number from a hospital or facility where you were treated for cancer, or by applying to the Greater Bay Area Cancer Registry (GBACR). The state law mandating the California Cancer Registry requires that the information gathered be used solely for research into the causes and cures for cancer. Some research requires contacting patients to get information about their past histories. The GBACR provides patient contact information to researchers only under strict procedures. Patient identity is disclosed only to researchers who are conducting projects meeting stringent requirements for scientific merit and for handling of confidential information, and whose research has been approved by a federally authorized committee that oversees the protection of human subjects (Institutional Review Board).

What can I do to lower my risk of developing or dying from cancer?
Scientists still have much to learn about the causes of cancer, but in the meantime, it is prudent to follow these guidelines:

  • Don't smoke, dip or chew tobacco and discourage young persons from starting tobacco use.
  • Eat at least 5 servings of fresh fruit and vegetables per day.
  • Cut down the amount of fat in your diet.
  • Limit the amount of alcohol you drink.
  • Try to get some exercise every day.
  • Protect yourself from the sun and avoid sunburns.
  • Women need to examine their breasts once a month, as well as get regular breast examinations, mammograms, and Pap smears.
  • Men should examine their testes regularly.
  • Discuss with your doctor the advisability of colorectal cancer screening.
  • Discuss with your doctor the advisability of being tested for hepatitis B or C infection. If you are not protected against hepatitis B virus, get vaccinated. If you are positive for either hepatitis B or hepatitis C virus, get screened regularly for liver cancer.
  • Ask your doctor for other specific recommendations, particularly if you have a family history of cancer.

**These FAQs have been adapted and modified from those published on the California Cancer Registry's Questions page.

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Fremont Bank Foundation Northern California Cancer Center gratefully thanks and acknowledges the Fremont Bank Foundation for its sponsorship of our website.